Waiting for Benlysta

Jeff | September 1, 2010 in Daily Life,Medications | Comments (0)

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I haven’t really had much to say lately. However, I was curious about how many people are having the same kind of conversations about the new medication, Benlysta.

My wife’s lupus hasn’t been in remission since I’ve known her. I’m not sure that it’s ever been in remission, but we’ve been talking about what that would be like. How would it be? Would she be able to reduce the amount of pain medication she takes? If your lupus is in remission, does that mean that you will no longer be light sensitive?

Wellness is not something we’ve had to deal with in the last ten years. How would that change our daily routine? Would it change the tempo of our lives? Probably not. My wife does whatever she wants to do, regardless of her health. Would it change how we relate to each other? Probably not. I bring her coffee in the morning because I love her, not because she has a hard time getting up.

Maybe it would just be a matter of not having to worry so much all the time. That would be nice.

Of course, there’s no guarantee that Benlysta will be effective, or even approved by the FDA, so this thinking may be all pie in the sky, whatever that means. But it can’t hurt to be hopeful, right?


Lupus and Acid Reflux

Jeff | June 25, 2010 in Daily Life | Comments (2)

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My wife has struggled with Gastroesophageal reflux disease for years now. I imagine that this is fairly common with anyone who has to take the amount of medication that she does.

She’s tried all kinds of medications for reflux over the years. The last one that was prescribed for her was Zegrid, but that is no longer covered by insurance because it is available over the counter. I still don’t understand that logic. We pay a bit more for it now since it’s not covered, but it still seems to do a good job.

Things that seem to help in addition to the medication are:

  • Avoiding carbonated beverages
  • Reducing caffeine
  • Avoiding late night snacks

My wife has a terrible time following any of these tips. Thank goodness for medication.