Living with Lupus [3]

living_with_lupus2.jpgThe third chapter of Living with Lupus is titled, What Causes Lupus – Maybe. Please note that at the suggestion of the author, Dodi Shultz, I’m now reading the updated second edition, and so if you’re following along with me, make sure you have the newer edition.

I’m just going to give my thoughts on this chapter and subsequent chapters, rather than doing such an in depth summary. If you want to know more then buy the book, and seriously, if you or your loved one has lupus, you need to educate yourself as best you can. For the price of four or five fancy coffee drinks, you can add a valuable reference to your library. It’s worth it. Continue reading

Establish a Support System

Having a good support system is essential for any family dealing with chronic illness, and I wish I could say that we had one. Today is another one of those days when I have to take a day off of work to get my wife into the doctor. She is going into her fourth week of dealing with pneumonia-like symptoms, and in my opinion, the doctor’s treatment has been less than adequate. Last night, I was actually afraid that she had died, just because I realized I hadn’t heard her cough for a while. I am seriously so stressed out right now, I could… well, nothing, because if I break down the whole house breaks down, so I keep going. Continue reading

My Wife Has Lupus

You may have noticed that I changed the name of this blog to My Wife Has Lupus, and I wanted to talk a bit about that decision and what prompted the change.

Lupusfamily.com was meant to be a place where everyone whose life is changed by lupus could come and share their experiences and maybe get some help or at least some understanding. I envisioned it as a site where my wife and I could share our thoughts about how we deal with day to life, and maybe help others and get some help in return. Continue reading

Would you like to write for lupusfamily.com?

Would you like to be a guest author here at lupusfamily.com? I would love to hear about your experiences as a lupus sufferer or as someone like myself, who has a loved one with lupus. You don’t need to write a novel or anything, just share some experience that you feel would benefit our little community. Just a few paragraphs is enough.

Lupusfamily.com was never meant to be a single voice crying out, but rather a chorus of people who are joined by experience. People who have to deal with a serious and potentially fatal illness that is better known as a running joke on the television show, House than as a disease that affects over five million people worldwide.

If you would like to be a guest blogger, please contact me using the from below. If you are already a registered user, then you are considered a contributer and may create a post using the WordPress interface. I will approve any post that is on topic and relevant to lupusfamily.com.

If you don’t feel that you are ready to write a complete post, then get involved by commenting on other posts. As of today, I have removed the login requirement for people who wished to comment on posts. Continue reading