Hospital Time

My wife is on her second evening in the hospital and we are not sure how soon she will be coming home. Her pneumonia, or whatever it is, just got out of control.

hospital.JPGOne one hand, I’m glad that she’s able to get rest and has people taking care of her, but on the other hand, lupus is really confusing and few medical professionals really know much about it.

We’ve never had to deal with a prolonged hospital stay before. I’m getting some help with the kids, but I want to be there for them as well, which leaves my wife alone at the hospital. She hates being alone, and I feel bad that I can’t be there all the time.

I’m not sure this post had much of a point, but I’m sure I’m not the only person out there dealing with something like this. Send some good thoughts our way, if you can.

Pneumonia Shots

Do lupus patients regularly get flu shots or pneumonia shots? I had to take my wife to the hospital this morning because her pneumonia was just getting worse and worse. During the admitting process, one of the doctors went on and on about the importance of pneumonia shots.

Do you usually get pneumonia shots? Do they help?

A Lupus Gene?

My inbox was filled with notices today of the results of the discovery of a lupus gene by a UK based research group called the Wellcome Trust. This was reported in the Daily Mail and Science Daily, but I found the original announcement from the Wellcome Trust. According to their press release,

In research published online today in the journal ‘Nature Genetics’, Professor Tim Vyse from Imperial College London and colleagues in the US and Canada have identified a new genetic variant, OX40L, which increases the risk of developing lupus. The variant, which is carried by one in six people in the UK, increases the risk of developing the disease by 50 per cent per copy. Continue reading