Lupus News for February 20, 2008
If you haven’t already done so, check out Chronic Chick’s new site at chronicchicktalk.com. She’s got her own domain now, and her new site is looking great.
Wick Davis has helped get us a category over at the LFA Forums, Caregivers of People Living with Lupus. Make sure you check it out. It helps to talk, or type, or whatever.
I’m really happy to have so many new visitors. I cannot tell you how close I was to shutting this place down last month. Thanks for all your support.
Hope all is good for you and your wife.
Jeff,
I’m so glad you didn’t shut down. Though I haven’t posted in quite awhile, I’ve been following lupusfamily from the start. I’d have missed it terribly.
Your post today on “What to say…” really struck a chord. I’ll have to share it–my husband needs to know he’s not alone in being shut out sometimes.
Did you see today’s Washington Post article, “Immune Systems Increasingly On Attack”? It popped up in today’s Google lupus alert. One of the more interesting articles to appear there in awhile. Be sure to read to the end to learn about pig worms as a potential new treatment.
http://www.washingtonpost.com/wp-dyn/content/article/2008/03/03/AR2008030303200.html
Thank you so much for your website.
Best wishes to you and your family,
Wendy
Thanks Wendy.
I hadn’t seen the Washington Post article, but I followed your link. That’s just wild! Giving someone an intestinal parasite causes their immune system to shift it’s focus away from attacking friendly structures? Interesting research, but ewww.. gross.
jeff,
Iam a 35 year old married women with lupus. I have nowhere to vent my feelings about this bad disease. i just found this site out of the blue. I will keep it and get some good information. I would like a cure because i am sick of taking 22 pills to stays alive. Lupus like to attack my kidneys when a flare and i can’t get off cellcept or predisone. Somedays i feel normal and some days i can’t walk or read a sentence. I hate winter’s in chicago because the cold hurts my body and i always gets the flu bad. I just got over it and i am still not good. Can you relate or understand my frautions? Thanks for letting me vent. Happy Hoildays. God Bless. Rosie
Venting sounds good. Iv’e never done this on line before. I don’t know how long I have had lupus &
fybro? At least a few years before I went to the doctor and got a positive ANA, which was probably about 6 years ago. I wouldn’t go to family functions. I thought I had the flu for 2 years. Went to doctor, stayed on antibotics that didn’t help.Then I could hardly lift my arms My joints all hurt.Now with the meds like Predisone helps alot.Things are better.
SORRY I ran out of room. I would like to get off the predisone but when Iv’e tried weaning myself I can’t lift my arms and lots of other pain. So I stay on. It’s helped to know what I have. Maybe they will come up with a cure, until then we exercise try not to get stressed,take our meds. Get enough sleep, don’t complain. They don’t understand any more. Get out,even if it hurts. Good luck