Comments on: MDs and ego http://lupusfamily.com/2008/02/mds-and-ego/ Support for individuals whose family or friends have lupus Sat, 10 Mar 2012 18:55:18 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Psychscribe http://lupusfamily.com/2008/02/mds-and-ego/comment-page-1/#comment-134 Psychscribe Fri, 07 Mar 2008 23:55:50 +0000 http://lupusfamily.com/?p=38#comment-134 Funny how each of us react differently. My rheumy (who I absolutely adore) tried me on lyrica but it was just awful for me - make me feel weak and drowsy all the time... Funny how each of us react differently. My rheumy (who I absolutely adore) tried me on lyrica but it was just awful for me – make me feel weak and drowsy all the time…

]]> By: Michelle http://lupusfamily.com/2008/02/mds-and-ego/comment-page-1/#comment-127 Michelle Sun, 02 Mar 2008 18:36:24 +0000 http://lupusfamily.com/?p=38#comment-127 Hey Jeff, I have been bouncing between my rheumy and my neuro for a problem that each doc thinks the other one should attend to. I am frustrated and tired of all of my docs. I just posted on this very subject last night. Hang in there My love to Jenny, Michelle Hey Jeff,
I have been bouncing between my rheumy and my neuro for a problem that each doc thinks the other one should attend to. I am frustrated and tired of all of my docs. I just posted on this very subject last night. Hang in there
My love to Jenny,
Michelle

]]> By: Jeff http://lupusfamily.com/2008/02/mds-and-ego/comment-page-1/#comment-126 Jeff Fri, 29 Feb 2008 05:13:57 +0000 http://lupusfamily.com/?p=38#comment-126 CC - Now that's interesting about the Lyrica. That is actually one of the medicines that was prescribed by one doctor but "banned" by another. I have to agree about the tests. If a test isn't going to make a big difference, and it's invasive, then it's just not worth it. CC – Now that’s interesting about the Lyrica. That is actually one of the medicines that was prescribed by one doctor but “banned” by another.

I have to agree about the tests. If a test isn’t going to make a big difference, and it’s invasive, then it’s just not worth it.

]]> By: chronicchick http://lupusfamily.com/2008/02/mds-and-ego/comment-page-1/#comment-125 chronicchick Fri, 29 Feb 2008 04:27:53 +0000 http://lupusfamily.com/?p=38#comment-125 On another note lyrica is the only thing that's given me a little relief from neuropathy On another note lyrica is the only thing that’s given me a little relief from neuropathy

]]> By: chronicchick http://lupusfamily.com/2008/02/mds-and-ego/comment-page-1/#comment-124 chronicchick Fri, 29 Feb 2008 04:26:13 +0000 http://lupusfamily.com/?p=38#comment-124 As you already know I have SLE to. I've got 5 total doctors. I have a rhemo, a pain dr, nerologist and my primary dr. The first dr I had was the pain dr when I saw my old primary. I think the problem is just how complicated lupus is and many of us go through so much heck finding a Dr to listen to our syptoms and listen and react. My rhemo at times disagrees with my neurologist. He wants me to have some invasive tests and the neuro says I'm in a lot of pain already and don't need a test that's not going to fix issues On another note I know of someone that used one of those "natural" clesasener that was suppose to empty them out and they ended up constipated really bad. As you already know I have SLE to. I’ve got 5 total doctors. I have a rhemo, a pain dr, nerologist and my primary dr. The first dr I had was the pain dr when I saw my old primary. I think the problem is just how complicated lupus is and many of us go through so much heck finding a Dr to listen to our syptoms and listen and react.

My rhemo at times disagrees with my neurologist. He wants me to have some invasive tests and the neuro says I’m in a lot of pain already and don’t need a test that’s not going to fix issues

On another note I know of someone that used one of those “natural” clesasener that was suppose to empty them out and they ended up constipated really bad.

]]> By: Jeff http://lupusfamily.com/2008/02/mds-and-ego/comment-page-1/#comment-123 Jeff Thu, 28 Feb 2008 14:13:31 +0000 http://lupusfamily.com/?p=38#comment-123 I agree that it really does take a team of folks to really handle all the challenges of lupus. It's just really bad when they all contradict each other. I agree that it really does take a team of folks to really handle all the challenges of lupus. It’s just really bad when they all contradict each other.

]]> By: S. Gethers http://lupusfamily.com/2008/02/mds-and-ego/comment-page-1/#comment-122 S. Gethers Wed, 27 Feb 2008 15:08:17 +0000 http://lupusfamily.com/?p=38#comment-122 I have Systemic Lupus and I also see too many doctors! It all may be very necessary though! You need an Internist, Rheumatologist, Cardiologist, Orthopedist, Pain Management Team, Psychiatrists, Psychotherapist, Neorologist, and a host of relatives and friends who REALLY care and love you. I wish you and your wife the best. I know its not easy loving someone who has such a painful and incurable disease! Some people write about how their spouses have abandoned them, so cudoos to you! Love your Lupie and Live Well! I have Systemic Lupus and I also see too many doctors! It all may be very necessary though! You need an Internist, Rheumatologist, Cardiologist, Orthopedist, Pain Management Team, Psychiatrists, Psychotherapist, Neorologist, and a host of relatives and friends who REALLY care and love you. I wish you and your wife the best. I know its not easy loving someone who has such a painful and incurable disease! Some people write about how their spouses have abandoned them, so cudoos to you! Love your Lupie and Live Well!

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