Seriously, how many doctors does it take to treat someone with lupus? Three? Ten?
There is the rheumatologist, the general practitioner, the pain specialist, the ENT, the physical therapist, the chiropractor, the pulmonologist, the psychologist, the psychiatrist, the ophthalmologist, and the really odd guy that just says, “I do bugs.”
What’s even more annoying is how everybody and their brother has some “cure” for lupus. Funny how the medical community just can’t see how that huge bottle of mega-juice is the cure for all your ills! Just look at the evidence! Oh… there is no evidence. Okay, how about these herbal supplements? They’re “natural” right? That’s gotta be good! Oh… all that immune system boosting is causing a lupus flare? Gee, didn’t see that coming.
I think my wife has enough doctors without every snake-oil multi-level-marketing salesperson trying to sell her a “cure” that doesn’t exist.
hey there … my name is Wick Davis and I’m with the Lupus Foundation of America. I came across your blog and wanted to say hi. I’m in the process of reaching out to other lupus bloggers. I see you already link to both our Website and our blog. Thank you so much. I have added a link to your blog on the LFA’s blog. Would love to stay in touch and figure out how we can continue to raise awareness about this disease. You can reach me at davis@lupus.org. I hope to hear from you. best, Wick
Hey Jeff,
I can relate to this post!!! My biggest problem is with family members always trying to get me to read about the latest “cure” or the best food to eat, or if I only took THESE vitamins….it puts a lot of pressure on me and then it’s MY fault for not trying all of these things, my fault that i am still sick.. very frustrating.
Michelle: It’s crazy, isn’t it? Most people mean well enough, but they just don’t get it. It’s so hard to explain to them that boosting the immune system of a lupus patient is bad. They just don’t understand what lupus does.
tell me about it. Everyone has a cure but dont have a clue what it is. Too many people are quick to “look” and judge and say oh your sick you can’t be
I have lupus and I have a very well intentioned husband who thinks that hollistic medicine will cure me. Everyone tells me to that multivitamins, excercise, smoothies, will be the way! If that were the case…why hasnt the medical doctors said anything??? My husband is very aggitated that my primary doctor hasnt recommended “natural” cures…maybe because there arent any!!!!!!
Oh one more thing. One of his clients told him about some holistic hollograms. They have little stickers that you put on where your having pain and VOILA the pain goes away! And they also have little hologram stickers for energy! you put them on the bottom of your foot and a miracle happens…You have energy!! After spending $120 on 2 pages of stickers which i didnt want to spend I’m here to report that SUPRISE…it didnt work! Can you imagine Drs saying…Oh here…put this sticker on and it will be ALL BETTER!! I wish…
LupyKatie: That’s got to be frustrating. I’ve never heard about the stickers. That’s so silly.
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