Comments on: Taking Time Off From Work http://lupusfamily.com/2008/04/taking-time-off-from-work/ Support for individuals whose family or friends have lupus Sat, 10 Mar 2012 18:55:18 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Laura http://lupusfamily.com/2008/04/taking-time-off-from-work/comment-page-1/#comment-951 Laura Fri, 30 Jan 2009 00:22:19 +0000 http://lupusfamily.com/?p=54#comment-951 I was just diagnosed in Nov./08 with lupus. I feel like a burden on my husband kids and family. I don't feel like anyone gets it. I am a professional who is working partime. I've recently taken a short sick leave to understand all of what's going on with my physical health and mental health. I am afraid of what the future has instore. I don't know alot about lupus. All I know is that everyday is different with regards to how I'm feeling. I was started on meds that don't agree with me but try to be strong and take them faithfully. I feel that at times I do have support from my spouse but if we are quarelling he throws comments out about my situation that I interpret as I AM A BURDEN!!!! I have two young children and am frustrated that they have to see me irritable somedays, crying others or perfectly fine other days. I feel an overwhelming sence of guilt because I can't always get things done around the house as I would like. I am a frustrated that my husband doesn' always keep the lines of communication open regarding his feelings or stresses at work or at home. He says he doesn't tell me because I CAN'T HANDLE IT! How does he know what I can handle or not. I feel this isn't fair of him to do. I'm not dying I'm just going through a disease process that will take time for me to understand. His keeping things from me hurts more than if he'd just talk to me like his equal, his friend, his spouse. Tell me what I can do to help my situation and get through the difficult times. Thanks. I was just diagnosed in Nov./08 with lupus. I feel like a burden on my husband kids and family. I don’t feel like anyone gets it. I am a professional who is working partime. I’ve recently taken a short sick leave to understand all of what’s going on with my physical health and mental health. I am afraid of what the future has instore. I don’t know alot about lupus. All I know is that everyday is different with regards to how I’m feeling. I was started on meds that don’t agree with me but try to be strong and take them faithfully. I feel that at times I do have support from my spouse but if we are quarelling he throws comments out about my situation that I interpret as I AM A BURDEN!!!! I have two young children and am frustrated that they have to see me irritable somedays, crying others or perfectly fine other days. I feel an overwhelming sence of guilt because I can’t always get things done around the house as I would like. I am a frustrated that my husband doesn’ always keep the lines of communication open regarding his feelings or stresses at work or at home. He says he doesn’t tell me because I CAN’T HANDLE IT! How does he know what I can handle or not. I feel this isn’t fair of him to do. I’m not dying I’m just going through a disease process that will take time for me to understand. His keeping things from me hurts more than if he’d just talk to me like his equal, his friend, his spouse. Tell me what I can do to help my situation and get through the difficult times. Thanks.

]]> By: milet http://lupusfamily.com/2008/04/taking-time-off-from-work/comment-page-1/#comment-220 milet Thu, 15 May 2008 06:10:32 +0000 http://lupusfamily.com/?p=54#comment-220 reading your entries reminds me of the time my husband (then boyfriend) have gone through because of my lupus. its a good thing he is a field engineer so he can squeezed some time off to take care of me when i am in the hospital. we belong to the same company so his boss and my boss understands our situation and they are very supportive of us. now, my husband is in kuwait working. i am now a stay at home mom to a daughter who is turning two this july. i am on remission for three years now but i still have monthly checkup and taking pred for maintenance, although my pred is low dose and we are working for me to be pred free. may god bless you and your wife. keep the faith. btw, do you mind if i put you up a link of your blog in my blog ? thanks reading your entries reminds me of the time my husband (then boyfriend) have gone through because of my lupus. its a good thing he is a field engineer so he can squeezed some time off to take care of me when i am in the hospital. we belong to the same company so his boss and my boss understands our situation and they are very supportive of us.

now, my husband is in kuwait working. i am now a stay at home mom to a daughter who is turning two this july. i am on remission for three years now but i still have monthly checkup and taking pred for maintenance, although my pred is low dose and we are working for me to be pred free.

may god bless you and your wife. keep the faith.

btw, do you mind if i put you up a link of your blog in my blog ? thanks

]]> By: Chelsea Dawson http://lupusfamily.com/2008/04/taking-time-off-from-work/comment-page-1/#comment-218 Chelsea Dawson Thu, 08 May 2008 18:17:27 +0000 http://lupusfamily.com/?p=54#comment-218 Thank you so much for sharing your story. Please visit my website & help spread lupus awareness www.piqualupusawareness.com Thank you so much for sharing your story. Please visit my website & help spread lupus awareness http://www.piqualupusawareness.com

]]> By: Dave http://lupusfamily.com/2008/04/taking-time-off-from-work/comment-page-1/#comment-213 Dave Fri, 25 Apr 2008 12:54:02 +0000 http://lupusfamily.com/?p=54#comment-213 Jeff, I appreciate you putting this post up for me. This issue has become a huge straining point on my life and marriage since I recently was promoted. It is difficult to manage the two, especially during a flare when my wife is unable to take care of herself. I have managed to change my hours so that I come to work earlier, while she is asleep, so that I can be home earlier in the day. The next step is to find ways to work at home whenever I need to. Jeff,

I appreciate you putting this post up for me. This issue has become a huge straining point on my life and marriage since I recently was promoted. It is difficult to manage the two, especially during a flare when my wife is unable to take care of herself. I have managed to change my hours so that I come to work earlier, while she is asleep, so that I can be home earlier in the day. The next step is to find ways to work at home whenever I need to.

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