Today was not a good day. My wife starting throwing up early this morning and was soon also having really bad diarrhea. This kind of thing is awful for anyone, but for a lupus patient, it’s even worse. The major problem was that she couldn’t take any of her medication. If you are used to taking high doses of pain medication throughout the day and you don’t get to, that’s not good. Really not good.
I did my best to keep her from getting dehydrated, using ice chips before moving on to water. She seems to be feeling a little better, but now she has a whole day where she’s missed most of her medication.
Do you mind if I ask how long your wife has lupus? When I get some time I’ll go back over your earlier blogs because I just found it. I ask because I am amazed at how much time your are taking to talk about and think about the illness. Don’t get me wrong, I hid my head in the sand to a point I could have died. But I know there are times that it feels like all my husband sees is the disease instead of the woman. It happens less now (we’ve been married almost 12 years, and I was diagnosed before we met). I’m sure your wife feel like a slug, and guilty for putting you through all of this…I know I’m so indebt to my husband. When I read through the blog, I feel even guiltier. He’s out building a shed right now, and my only contribution is to help remind him to drink and to make him food.
Anyway, I would be interested to know if you are able to set aside moments to be a romantic couple. If so, how do you do it? We sometimes go to movies and I have a nice chair with a “lid” that I can take to a lake. Summer evenings are better, too because it’s cooler and no sun, but I’m always open to suggestions from others in the same situation
This has happened to me many times and it really sucks. I’m so sorry. I hope your wife is feeling better.
Sorry to hear it. Hopefully, things have been better in the days since this post.
Sorry about the lack of an update here, but things are still pretty difficult. You know how sometimes with lupus you have one thing that leads to another and so on and so on? Well, that’s where we are right now. I hope this weekend will allow me some time to write.
thanks 4 the help
my wife has had lupus for 16yr and she also is white.and most blackfemales why is that??