We’re heading down to UCLA again to see Jenny’s rheumatologist. It’s always a tough trip. (It’s four hours down and four hours back up for an hour appointment.) We hope that since Jenny had all those tests done, they will tell us something we didn’t know already.

I hope that all of the tests and MRIs actually got sent up to UCLA like we requested. It’s never been done on time. It always ends up that we make the requests weeks in advance and nothing ever gets sent to the rheumatologist, who is the only one of Jenny’s doctors that I trust.

I’ve had a hard time writing lately. I’m not sure why, because there’s a lot to write about. I just can’t seem to get much of it together. I know I’m tired, but I’m always tired, so I don’t see that making a difference.

After writing all those suggestions last month about being prepared to go to the doctor or emergency room, I was kicking myself yesterday for not having information about all of Jenny’s doctors. She had just had an MRI and was pretty sedated, and they were asking about where to send the information. I should have that information with me in my wallet, but I don’t. I’m going to try and figure out some way to do that without making my wallet look like a Big Mac. I’ll let you know what I come up with.

Jenny was recently sent some sun resistant clothes to try, and she likes them a lot so far. I’ll let you know more soon. I’m really glad summer is on its way out. The sun makes Jenny’s lupus flare like crazy.

I promise to write something useful soon.