I meant to write this weeks ago, but life has been more challenging than usual around here.

Check out 50 Years Without a New Lupus Drug! What Does it Mean to You? over at On the Road to a Cure. It’s pretty ridiculous when you think about it. This sentence really stuck in my mind:

No one is more qualified to speak out about the need for better treatments than individuals with lupus who have no option but to keep using the old drugs that were approved for lupus when Dwight Eisenhower was still president and can have side effects worse than the primary disease.

For those of you who deal with the side effects of lupus medication, you know that this can be true.

Check out the article. It may be too late to give feedback but we can check out the results when they are posted.

I wanted to discuss the results of the last poll about the visibility of lupus symptoms.

• 37% indicated that they sometimes have noticeable symptoms.
• 32% of those polled said that nobody would guess that they have an illness.
• 24% voted that they hide their symptoms very well.
• 8% of those who responded have obvious symptoms.

Sometimes I wonder if lupus would be treated differently if it had more visible symptoms?