I meant to write this weeks ago, but life has been more challenging than usual around here.
Check out 50 Years Without a New Lupus Drug! What Does it Mean to You? over at On the Road to a Cure. It’s pretty ridiculous when you think about it. This sentence really stuck in my mind:
No one is more qualified to speak out about the need for better treatments than individuals with lupus who have no option but to keep using the old drugs that were approved for lupus when Dwight Eisenhower was still president and can have side effects worse than the primary disease.
For those of you who deal with the side effects of lupus medication, you know that this can be true.
Check out the article. It may be too late to give feedback but we can check out the results when they are posted.
Great blog! I urge anyone affected by lupus to visit the Alliance for Lupus Research (ALR) web site the world’s largest private funder of lupus research. 100% of all contributions to the ALR goes directly to support lupus research programs. Together, we will find a cure!
http://www.lupusresearch.org
http://www.myspace.com/lupusresearch
http://www.facebook.com/pages/Alliance-for-Lupus-Research/44101039807
Thanks for helping to promote the 50 years campaign, Jeff. Much appreciated.
best,
Wick
LFA
Considering how fast other medical advancements are occurring, this is really amazing.
I have lupus and i also suffer deeply .my joints hurt shots in my knees and hip headaches tired all the time.swollen neck that hurts rash on face across nose my latest is my eyes bother me but my eye doctor says my eyes are ok it feels like pressure in my head but im not going to let it win i think positive all the time pray to God all the time i will make it have faith dont give up
Well I have been dealing with all of this for 20 years and my medications have stayed the same the whole time – different doses but same meds – I’m not surprised in the least. Most times no one even realizes there is anything wrong with me as my diseases have been very much under control for years – sorry that more people do not have the same luck I have. So far my flares have been mild – keeping my fingers crossed on that!
Karen
http://karensquilting.com/blog/