Lupus: Not so invisibile after all

I wanted to discuss the results of the last poll about the visibility of lupus symptoms.

  • 37% indicated that they sometimes have noticeable symptoms.
  • 32% of those polled said that nobody would guess that they have an illness.
  • 24% voted that they hide their symptoms very well.
  • 8% of those who responded have obvious symptoms.

Sometimes I wonder if lupus would be treated differently if it had more visible symptoms?

1,555 thoughts on “Lupus: Not so invisibile after all

  1. I have to totally agree with your here Jeff. I have had so many people say that I don’t look sick. Well just because I don’t look sick doesn’t mean I am not sick. I think if lupus was “Visible” maybe they would find a cure quicker. Unfortunately, Lupus Patients can’t yell for very long because they don’t have the energy, that’s why husbands like you are a major asset. I have been told I am faking it or its in my head. I get pretty red when someone tells me I’m faking it. You look at my medical records then you tell me. When I am wore out from doing a few very simple chores around the house. When I can’t catch my breath cause I’m wore out. Sorry went on a rant :)

    chronic chick