Comments on: Lupus Diagnosis: Poll Results http://lupusfamily.com/2009/01/lupus-diagnosis-poll-results/ Support for individuals whose family or friends have lupus Sat, 10 Mar 2012 18:55:18 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: pam r. http://lupusfamily.com/2009/01/lupus-diagnosis-poll-results/comment-page-1/#comment-1025 pam r. Sun, 22 Feb 2009 19:24:35 +0000 http://lupusfamily.com/?p=116#comment-1025 Hi, I just wanted to share my experience...this is just a VERY brief small part of it..I sent this to the LFA. I have a very complex case, but am a good resource since I have been on all ends of it. I always tell people when they ask how I feel..I feel fine..I don't know what other people who are "normal" feel like. I am a very positive, educated person though.I figure this is what I was dealt and look at Lupus more from a business perspective...outside looking in..certain issues have to be dealt with..meds have to be taken..but the rest of my life goes on. I live in the now. please feel free to contact me anytime about anything you guys are dealing with. I am also good gathering info :) My name is Pam , I am a Lupus patient. I was diagnosed with Lupus Nephritis in 1993 at the age of 20. I have been able to lead a very fulfilling life.I married, had 2 successful pregnancies and became self-employed, with minimal side effects from Lupus. Because I had severe damage to my kidneys from Lupus, I always knew I would some day need dialysis or a kidney transplant. I placed my name on the organ transplant list in 2004. Unfortunately my kidneys showed greater deterioration and dialysis was eminent. November 2005 I started in center dialysis. It was a grueling 3.5 hrs ordeal 3x per week hooked up to a machine. Though being one of the youngest undergoing dialysis in center, I found comfort in knowing that I was not the only one dealing with kidney failure. I was lucky and on May 22, 2007, I received the gift of life from a deceased donor. No longer did I have to be tethered to a machine 3x per week. I now have increased energy, can spend more time with my kids and give back to the community in more ways than I could ever before. I have an increased awareness that I am not the only one who deals with a chronic illness. I will never be "free" from Lupus. Though I now have a functioning kidney, the chance for Lupus flares are always possible. Lupus is an illness that deserves more research and awareness. So many people suffer alone. The many faces of Lupus can be confusing and discouraging to those of us affected. The general public has little knowledge as to what Lupus is. Many have heard the word "Lupus" on tv shows such as "House" but do not know the the facts. Lupus awareness must be spread. Hi,

I just wanted to share my experience…this is just a VERY brief small part of it..I sent this to the LFA. I have a very complex case, but am a good resource since I have been on all ends of it. I always tell people when they ask how I feel..I feel fine..I don’t know what other people who are “normal” feel like.
I am a very positive, educated person though.I figure this is what I was dealt and look at Lupus more from a business perspective…outside looking in..certain issues have to be dealt with..meds have to be taken..but the rest of my life goes on. I live in the now. please feel free to contact me anytime about anything you guys are dealing with. I am also good gathering info :)

My name is Pam , I am a Lupus patient. I was diagnosed with Lupus Nephritis in 1993 at the age of 20. I have been able to lead a very fulfilling life.I married, had 2 successful pregnancies and became self-employed, with minimal side effects from Lupus.

Because I had severe damage to my kidneys from Lupus, I always knew I would some day need dialysis or a kidney transplant. I placed my name on the organ transplant list in 2004. Unfortunately my kidneys showed greater deterioration and dialysis was eminent. November 2005 I started in center dialysis. It was a grueling 3.5 hrs ordeal 3x per week hooked up to a machine. Though being one of the youngest undergoing dialysis in center, I found comfort in knowing that I was not the only one dealing with kidney failure.

I was lucky and on May 22, 2007, I received the gift of life from a deceased donor. No longer did I have to be tethered to a machine 3x per week. I now have increased energy, can spend more time with my kids and give back to the community in more ways than I could ever before. I have an increased awareness that I am not the only one who deals with a chronic illness. I will never be “free” from Lupus. Though I now have a functioning kidney, the chance for Lupus flares are always possible.

Lupus is an illness that deserves more research and awareness. So many people suffer alone. The many faces of Lupus can be confusing and discouraging to those of us affected. The general public has little knowledge as to what Lupus is. Many have heard the word “Lupus” on tv shows such as “House” but do not know the the facts. Lupus awareness must be spread.

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