Comments on: Sjögren’s Syndrome http://lupusfamily.com/2009/02/sjogrens-syndrome/ Support for individuals whose family or friends have lupus Sat, 10 Mar 2012 18:55:18 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: body wrap http://lupusfamily.com/2009/02/sjogrens-syndrome/comment-page-1/#comment-24149 body wrap Sat, 12 Mar 2011 20:27:12 +0000 http://lupusfamily.com/?p=152#comment-24149 How do we know where to look? How do we know where to look?

]]> By: Wendy http://lupusfamily.com/2009/02/sjogrens-syndrome/comment-page-1/#comment-1046 Wendy Thu, 12 Mar 2009 03:44:24 +0000 http://lupusfamily.com/?p=152#comment-1046 There's also a wonderful blog on Sjogren's at reasonablywell-julia.blogspot.com/ Julia is a retired RN with Sjogren's and a terrific writer too. She's really done her homework and provides a wealth of info via links to top-notch sources, along with her brilliant synopses of pertinent facts, all organized in a handy index so it's easy to find past posts on your topic of interest. There’s also a wonderful blog on Sjogren’s at
reasonablywell-julia.blogspot.com/
Julia is a retired RN with Sjogren’s and a terrific writer too. She’s really done her homework and provides a wealth of info via links to top-notch sources, along with her brilliant synopses of pertinent facts, all organized in a handy index so it’s easy to find past posts on your topic of interest.

]]> By: Paula http://lupusfamily.com/2009/02/sjogrens-syndrome/comment-page-1/#comment-1032 Paula Sun, 01 Mar 2009 04:11:46 +0000 http://lupusfamily.com/?p=152#comment-1032 For accurate current information on Sjogren's Syndrome may I recommend a site that does not require paid membership to access a huge amount of information on a wide variety of things relative to this autoimmune disorder which effects approximately 4 million Americans. Evoxac is a medication for the dry eyes and dry mouth symptoms of this condition. It is however not a a treatment for the disease itself. Sjogren's takes on average eight years after complaint of symptoms to a health care professional until a diagnosis is received. Older recommendations were to take an occasional NSAID, over the counter drugs like Tylenol, etc. Many not current websites, that appear otherwise professional and competent have not kept pace with current recommendations for early treatment with disease modifying antirheumatic drugs to preserve and enhance quality of life. It is an inconsistent disease. Showing a variety of symptoms that can change from day to day in the same person and have vastly different presentations in another. Please visit www.sjogrens.netfirms.com for further information. For accurate current information on Sjogren’s Syndrome may I recommend a site that does not require paid membership to access a huge amount of information on a wide variety of things relative to this autoimmune disorder which effects approximately 4 million Americans.
Evoxac is a medication for the dry eyes and dry mouth symptoms of this condition. It is however not a a treatment for the disease itself.
Sjogren’s takes on average eight years after complaint of symptoms to a health care professional until a diagnosis is received.
Older recommendations were to take an occasional NSAID, over the counter drugs like Tylenol, etc.
Many not current websites, that appear otherwise professional and competent have not kept pace with current recommendations for early treatment with disease modifying antirheumatic drugs to preserve and enhance quality of life.

It is an inconsistent disease. Showing a variety of symptoms that can change from day to day in the same person and have vastly different presentations in another.
Please visit http://www.sjogrens.netfirms.com for further information.

]]> By: Wick http://lupusfamily.com/2009/02/sjogrens-syndrome/comment-page-1/#comment-1030 Wick Fri, 27 Feb 2009 02:11:24 +0000 http://lupusfamily.com/?p=152#comment-1030 Hi there Jeff ... I am hoping you can help me rally all the "lupus troops." March 3, 2009 is the Lupus Foundation of America’s 11th Annual Advocacy Day on Capitol Hill. Even if you cannot physically join us on Tuesday, there are still several things you – and your family and friends – can do to help raise awareness about the seriousness of lupus. To learn all the easy things you can do from the comfort of your home, please go to http://lfa-inc.blogspot.com/2009/02/even-if-you-cannot-be-in-dc-for-lfas.html To take it a step further, if you're willing to do so, I'd really appreciate it you would consider posting this information (what you find at the link to my blog) on your blog, and letting all your friends and family know how important this is to the lupus community. If you have any questions, feel free to email me at davis@lupus.org. Thanks for your help. All the best, Wick Hi there Jeff …

I am hoping you can help me rally all the “lupus troops.”

March 3, 2009 is the Lupus Foundation of America’s 11th Annual Advocacy Day on Capitol Hill. Even if you cannot physically join us on Tuesday, there are still several things you – and your family and friends – can do to help raise awareness about the seriousness of lupus.

To learn all the easy things you can do from the comfort of your home, please go to http://lfa-inc.blogspot.com/2009/02/even-if-you-cannot-be-in-dc-for-lfas.html

To take it a step further, if you’re willing to do so, I’d really appreciate it you would consider posting this information (what you find at the link to my blog) on your blog, and letting all your friends and family know how important this is to the lupus community.

If you have any questions, feel free to email me at davis@lupus.org.

Thanks for your help.

All the best, Wick

]]>