Comments on: Happy Mothers Day

By: LupusLady

LupusLady — Tue, 14 Jul 2009 22:08:22 +0000

Thanks a lot mctd_hubby,
I am very sorry to hear about your wife. I know it must be very hard for her but I know you are her support system. That’s just it, the support of family is always great but you just want to be able to do for your kids and it’s so hard. Especially when your not 100% yourself physically. I hope that every day it will get better for her. I wake up everyday and pray that for myself. God bless you.

By: mctd_hubby

mctd_hubby — Sun, 12 Jul 2009 16:04:45 +0000

Hey, LupudLady:

My wife was diag’d with MCTD a couple of years ago and like you, she was used to being very active and independent. She was in a very bad car accident about 4 years ago that triggered a major flare and has been suffering with fatigue, forgetfulness, pain, swelling as well as the nerve damage caused by the MVA. I’m nt sure that I can really give you any real advice, but I can let you know that you are not alone. I know that it is tough but you are lucky that you have a husband that is so supportive.

By: LupusLady

LupusLady — Sun, 12 Jul 2009 09:14:43 +0000

Hello,
I just found this site and I was so happy that the topic was brought up about Mothers who have Lupus. Jeff that was a awesome blog you sent out for Mother’s Day. Sometimes a lot of women feel that they don’t hear they are appreciated enough. So I commend you sir. Well I will cut to the chase….I was diagnosed with SLE Lupus in November 2008 and it has been nothing but fatigue, pain, confusion, forgetfulness, and the list goes on. My husband has been very supportive and he is my backbone. But me, myself, I am not confident in myself. I have no energy anymore, I can not prepare meals like I use to because I get very dizzy, I am constantly in a lot of pain, and I can not be in the sun anymore. I used to always take my girls out to the park and to the beach, but I can’t do that anymore and it hurts me really bad that I can’t do this for them anymore. I am just wondering is there anyone that can give me advice. I am a go getter but this Lupus and its symptoms are really getting me down.

By: Emily

Emily — Mon, 01 Jun 2009 05:12:57 +0000

Hey Jeff,
Been checking in with your blog every once in a while because I find your perspective so interesting. I have lupus as well as two children. My husband is amazing. A really wonderful man. I often wonder how I got so lucky. I like to read the spouse’s perspective because I know it can’t be easy.

I was also struck by your sweet words recognizing mothers with lupus who do everything they can. Thank you for that. I have a hard time finding resources for mothers with lupus raising children. I stay at home with a 4 and 7 year old and am finally seeing the light at the end of the tunnel. The first years were brutal. They’re actually quite foggy to me and when people ask how I did it, I often shrug and say “i have no idea.”
I do though. Without my husband, life would be a dark place indeed.
I wish you well, commend your dedication to lupus and hope that your wife has more good days than bad.

Have a good week,
Emily Provost