The results of the last poll show that the majority of people reading this blog have lupus, if the poll is a valid sample of the readership. This wasn’t a big surprise. I had suspected that was the case. The results were part of the reason I changed the layout, because my wife has been saying for some time that the site wasn’t very pretty and looked too manly. I’m not sure what was manly about it. It’s not like I had powertools and race cars on the sidebars. I do think I will change the tagline, since I want the site to be concerned with everyone who is affected by lupus.
I’m still working on the new layout, trying to add things here and there. I’m working on making the site friendly to mobile devices. My wife and I have 3G network phones, and our internet works great, but if the site isn’t designed to be accessed through a mobile device, it’s really annoying to try and view it.
Speaking of which, another important feature we have on our phone is our GPS navigation system. My wife tends to get lost easily. We know that it is due to the cognitive dysfunction or lupus fog, but it can be a real problem for her to navigate around town. The GPS system makes her feel a little safer and spares me quite a few phone calls about directions.
I haven’t restored the Twitter feed because I don’t like the widget, and I’m not sure of the value of micro-blogging, especially when I’m on FaceBook so often. If I get enough people following the blog on FaceBook, then I will create a page there where that will be easier and more interactive. I only have 11 followers right now, so it doesn’t seem like it’s worth it. There is a widget on the sidebar if you want to follow this blog on FaceBook. I enjoy FaceBook. It’s really the only social netwooking site I use now.
I should have a new poll up in a day or so. Things are going okay. My wife is really tired lately. I’m not sure if it’s from too much sun, or some other issues. We should be returning to UCLA pretty soon, so maybe we’ll find out more. Probably not. You know how that goes.
I think although most of your readers are Lupus patients themselves, it is such a good thing to get the aspect of a family member from your blogs. I often wonder how my husband feels, however being one to keep to himself, I don’t get his point of view. I enjoy reading your blogs, and will check you out on Facebook.
Hi, I’m sorry you are having to deal with lupus. I know first-hand what it’s like to love someone with lupus. My son was diagnosed when he was 10 years old and is now 17. He has done remarkably well I believe in part because we have been his strongest advocates in negotiation of his treatment, care and diet. Being able to give loving support to him has sustained us and only made us more determined to help him continue to live a fairly normal life. Caring for our son gives us a feeling of control in what has in the past been an out of control life! I encourage you in your fight and encourage you also to receive every bit of support your family is willing to give. It does help them feel better if they can help. Believe me, it helps us!
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