http://lupusfamily.com/2009/06/my-readers-have-lupus/ Support for individuals whose family or friends have lupus Fri, 09 Jul 2010 00:01:50 +0000 hourly 1 http://wordpress.org/?v=3.0 http://lupusfamily.com/2009/06/my-readers-have-lupus/comment-page-1/#comment-1398 Jane Merves Tue, 04 Aug 2009 16:29:02 +0000 http://lupusfamily.com/?p=233#comment-1398 Hi, I'm sorry you are having to deal with lupus. I know first-hand what it's like to love someone with lupus. My son was diagnosed when he was 10 years old and is now 17. He has done remarkably well I believe in part because we have been his strongest advocates in negotiation of his treatment, care and diet. Being able to give loving support to him has sustained us and only made us more determined to help him continue to live a fairly normal life. Caring for our son gives us a feeling of control in what has in the past been an out of control life! I encourage you in your fight and encourage you also to receive every bit of support your family is willing to give. It does help them feel better if they can help. Believe me, it helps us! Hi, I’m sorry you are having to deal with lupus. I know first-hand what it’s like to love someone with lupus. My son was diagnosed when he was 10 years old and is now 17. He has done remarkably well I believe in part because we have been his strongest advocates in negotiation of his treatment, care and diet. Being able to give loving support to him has sustained us and only made us more determined to help him continue to live a fairly normal life. Caring for our son gives us a feeling of control in what has in the past been an out of control life! I encourage you in your fight and encourage you also to receive every bit of support your family is willing to give. It does help them feel better if they can help. Believe me, it helps us!

]]> http://lupusfamily.com/2009/06/my-readers-have-lupus/comment-page-1/#comment-1200 My Awakened Life Wed, 17 Jun 2009 19:59:32 +0000 http://lupusfamily.com/?p=233#comment-1200 I think although most of your readers are Lupus patients themselves, it is such a good thing to get the aspect of a family member from your blogs. I often wonder how my husband feels, however being one to keep to himself, I don't get his point of view. I enjoy reading your blogs, and will check you out on Facebook. I think although most of your readers are Lupus patients themselves, it is such a good thing to get the aspect of a family member from your blogs. I often wonder how my husband feels, however being one to keep to himself, I don’t get his point of view. I enjoy reading your blogs, and will check you out on Facebook.

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