Sometimes I learn a lot about what people are curious about by reading the keywords that they typed into a search engine like Google or Yahoo that eventually brought them to this site. I noticed yesterday that someone had done a search on the words lupus, dizziness, and sweating.
I noticed this immediately because it is something my wife has had trouble with for the last month or so. Typically, the sweating comes first and the dizziness follows a bit later. Now when she mentions that she’s sweating, I try and get her to sit down and rest.
The sweating thing is relatively new for her. Obviously someone else with lupus is experiencing the same symptoms, so I thought I would throw it out there for discussion.
On an unrelated note, I’ve swapped out my old polling plugin for a new one, and should have a new poll up soon. This plugin is a lot more powerful and flexible, but requires more extensive setup.
The night sweats I got used too, but the sweating during the day for no apparent reason is driving me crazy. It just started recently and I can’t find a common trigger. It always happens when I am giving a public presentation for work. And no, it isn’t nerves, I’ve been public speaking for 20 years. I actually carry one of my grandfathers old handkerchiefs in my pocket when I’m presenting so that I can (hopefully) inconspicously dab the droplets before they start running down my face and become blatantly obvious to my audience. It happens at random other times too, even when the AC in my office has me shivering. Can’t figure that one out. I haven’t experienced the dizziness in conjunction. Though I do get the dizzies at least once a day. I would love a definite explanation but chalk it up to one of the countless medications interacting with either my body or one of the other countless medications. I look at some of the other side effects that I could be experiencing from all of these chemicals and think that, while VERY annoying, they are managable. I’ll take them over some of the others.
My wife has the same problem with sweating. She is a nurse and very knowledgeable with lupus since herself is a lupus patient. She think sweating is caused by the medication pramosone. It also increase her heartbeat a lot. Her pulse is somewhere above 110.
hi well i get the sweats i wake with the back of my neck soaked i am currently on no meds 4 lupus so the blame on the meds does not sit well with me
i sweat and i am not on medication
I have actually just come from the doctor again. I sweat profusely. I have had lupus since 1995. My sweats started about 5 years ago and have only gotten worse as time goes by. My doctors have thought it to be my medications too. I am not saying it isn’t, but I have been sweating from head to toe and yes it does seem to get worse when I am under stress or pressure. I sweat when it is below zero outside or if it is 94 degrees and the airconditioning is freezing indoors. My skin is clammy and cold as if I were dead and sweat running down my face and back at the same time. What is really screary or seems so odd is how I can see the sweat beads coming out of the pores of my skin on my face. It looks like water in a sponge. It is so uncomfortable and embarrassing because I work in the public and I am constantly shaking hands and meeting people. People look at you like they are going to get something from you when they touch you. For two weeks now my fingers are starting to tingle and go numb. More on the right than left. My doctor is sending me to a neurologist for the numbness and an encrenologist for the sweats. If anyone out there can give me any advise, I would certainly welcome it. Thanks so much!!
I also sweat to the point where I need to shower. Renda has described what I go through exactly. Admittedly, I’m on prednisolone and a few other meds for pain and heart issues, so it could be those, but I was also like this pre medication.
It drives me insane, the only reassurance for me is knowing that I’m not alone and that other SLE sufferers are experiencing similar sweat issues.
Renda – you will be seeing an endocrinologist – they deal with things like diabetes, autoimmune and hormonal issues, i.e.,thyroid. I have had this sweating issue for years as well and can really relate to the suffering. I also see a neurologist for seizures I developed – she in turn had tests done for pain in the left hand and numbness in the right hand – turns out it is entrapment of the ulnar nerve for the left hand and carpel tunnel for the right hand. No doctor or specialist has been able to account for the sweating, and they also don’t seem to think it is a “big deal” enough to investigate! I was sent to a rheumatologist for further diagnosis and she was extremely helpful – injection of cortisone in my left hand eased the pain and freed the tendon. The rest was diagnosed as: heel spur (very painful foot), Raynauds, osteoarthritis in knees, fibromyalgia and possibly lupus. I also took prednisone for years but have also been off it for years so It is not that. I also get a burning sensation in the bottom of my legs in addition to the numbness in my hands in addition to these uncontrolled sweats. They happen for no know reason and I do not have to be doing anything for them to occur. My family doctor speculates that since I have so many autoimmune issues that this falls into the same category. Also, I don’t know if you have had an ANA (anti-nuclear antibody test) but mine came back positive – which indicates inflammation in the body as well as suggests lupus and fibromyalgia. Good luck – sure wish a researcher would take this on to give us all some relief but for now I think we need to keep telling our specialists about the problem until they can perhaps start to look for a connection. (Incidentally, I also went thru early ovarian failure at 34 years of age, some 20 years ago, so the sudden sweating cannot be attributed to menopause). You may wish to check your body temperature – mine tends to be quite low (95 to 96ish) and 98.6 feels like I am experiencing a temperature. I have noted on other sites that low body temperature seems to be related to the sweating problem.