Comments on: Headaches from B12 shot http://lupusfamily.com/2009/09/headaches-from-b12-shot/ Support for individuals whose family or friends have lupus Sat, 10 Mar 2012 18:55:18 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: alan http://lupusfamily.com/2009/09/headaches-from-b12-shot/comment-page-1/#comment-33311 alan Sat, 02 Jul 2011 20:01:55 +0000 http://lupusfamily.com/?p=291#comment-33311 I have been a diabetic for over twenty years, and the year before last i became so weak i had to be helped into the A & E, the Doctors there said i was taking Drugs and refused to treat me as i was slurring and feeling confused and they failed to recognise that i was really really low on iron, and have never taken drugs in my life. My own Doctor got me tested and now on B12 injections ( 1 every 3 months ). Lately have been having the biggest migraines ever and have never had them in the past. I Like playing football at weekends and having a pint afterwards ( only 2 or 3 ) but now i know after alcohol even only a sip and i'll be floored for a day by a migraine. It is definitely the B12 injections, also coming out in an array of spots on my chest and neck but only a week after the injection ? I have been a diabetic for over twenty years, and the year before last i became so weak i had to be helped into the A & E, the Doctors there said i was taking Drugs and refused to treat me as i was slurring and feeling confused and they failed to recognise that i was really really low on iron, and have never taken drugs in my life. My own Doctor got me tested and now on B12 injections ( 1 every 3 months ). Lately have been having the biggest migraines ever and have never had them in the past.
I Like playing football at weekends and having a pint afterwards ( only 2 or 3 ) but now i know after alcohol even only a sip and i’ll be floored for a day by a migraine.
It is definitely the B12 injections, also coming out in an array of spots on my chest and neck but only a week after the injection ?

]]> By: Abbey http://lupusfamily.com/2009/09/headaches-from-b12-shot/comment-page-1/#comment-1734 Abbey Sat, 17 Oct 2009 04:32:28 +0000 http://lupusfamily.com/?p=291#comment-1734 Hi there, I'm a 35, female with SLE and I just increased my vit B12 again. I just only made the possible connection between an increasing anxiety/strange headache...although not a diabilitating headache, and the timing of my increasing my vit B12. (in pill form) Tonight at a social gathering, my anxiety was out of control and I just confided in my bestfriend that I was losing my mind. So we came searching for answers. This isn't conclusive, but it's worth taking notes on. Hi there, I’m a 35, female with SLE and I just increased my vit B12 again. I just only made the possible connection between an increasing anxiety/strange headache…although not a diabilitating headache, and the timing of my increasing my vit B12. (in pill form) Tonight at a social gathering, my anxiety was out of control and I just confided in my bestfriend that I was losing my mind. So we came searching for answers. This isn’t conclusive, but it’s worth taking notes on.

]]> By: violet http://lupusfamily.com/2009/09/headaches-from-b12-shot/comment-page-1/#comment-1661 violet Tue, 06 Oct 2009 18:09:28 +0000 http://lupusfamily.com/?p=291#comment-1661 I am 27 years old and also have Lupus. I am glad to have come across your blog as my rheumatologist just recommended I take a B12 supplement for my chronic fatigue. If it's going to give me worst headaches, I'd rather deal with it as it is now. Thanks for sharing your experience. I am 27 years old and also have Lupus. I am glad to have come across your blog as my rheumatologist just recommended I take a B12 supplement for my chronic fatigue. If it’s going to give me worst headaches, I’d rather deal with it as it is now. Thanks for sharing your experience.

]]> By: J http://lupusfamily.com/2009/09/headaches-from-b12-shot/comment-page-1/#comment-1510 J Mon, 14 Sep 2009 00:53:21 +0000 http://lupusfamily.com/?p=291#comment-1510 I don't know about the B12, but I had a suggestion for keeping track of it. I keep a calendar (a Google calendar) where I write things that happen as they happen. I usually write down the symptoms that I'm having when I'm not feeling well, when I start new medicines and stop medicines, change my doses, etc. I hope that helps. I don’t know about the B12, but I had a suggestion for keeping track of it. I keep a calendar (a Google calendar) where I write things that happen as they happen. I usually write down the symptoms that I’m having when I’m not feeling well, when I start new medicines and stop medicines, change my doses, etc.

I hope that helps.

]]> By: Nicole http://lupusfamily.com/2009/09/headaches-from-b12-shot/comment-page-1/#comment-1504 Nicole Sat, 12 Sep 2009 21:08:51 +0000 http://lupusfamily.com/?p=291#comment-1504 Hi, my name is Nicole. I am 39, & have had Lupus since my early teens. From age 15 or so until I was 29, the symptoms were almost non-exsistant. Then all of a sudden one day I had a stroke, and then it was a snowball effect, 3 more strokes followed RA, Fibro, cognitive problems,& etc. I have not had a remission in 10yrs. I have been B12 deficient since I was a kid. Nothing seems to work to bring me back to normal levels, or let me rephrase that, other peoples normal. lol I have kept a running blog of symptoms, & I have noticed that after recieving my B12 shots, I have headaches that lasted more than a couple days, & its "different" from my other headaches. I have suffered from migraines since I was in my early teens, so I am used to nasty headaches, & the ones after the B12 shots are "different" than daily migraines. I use the word "restless" but I also get that as well with the headaches. I have spoke to my Dr about this, & I hear the same thing when I walk in the office with some off the wall symptom, My Dr hadn't heard of a side effect like that, big surprise. lol I basically have learned to just improvise, & see what works best for me. Our bedroom is blacked out, no light, I sleep with icepacks on the back of my head, I find for me at least that the cooler I stay, the better I feel, laugh at me if you will, I put a pair of pj pants, & a shirt in ziploc baggies to break out when I have a migraine. I use 3 fans in my room to help with air circulation so it stays cool. I use an eye mask whenever I sleep, & after 10yrs, I am still finding little things here and there. Somedays I don't come out of my little dungeon, & I feel absolutely no guilt what-so-ever. I know that laundry, dishes & vacuuming will still be waiting for me, when I feel a little better. I am always happy to swap stories & talk with people in the Lupus circle, its nice to have someone that knows about how crazy it is to live with Lupus. -Nicole :-) Hi, my name is Nicole. I am 39, & have had Lupus since my early teens. From age 15 or so until I was 29, the symptoms were almost non-exsistant. Then all of a sudden one day I had a stroke, and then it was a snowball effect, 3 more strokes followed RA, Fibro, cognitive problems,& etc. I have not had a remission in 10yrs.

I have been B12 deficient since I was a kid. Nothing seems to work to bring me back to normal levels, or let me rephrase that, other peoples normal. lol I have kept a running blog of symptoms, & I have noticed that after recieving my B12 shots, I have headaches that lasted more than a couple days, & its “different” from my other headaches. I have suffered from migraines since I was in my early teens, so I am used to nasty headaches, & the ones after the B12 shots are “different” than daily migraines. I use the word “restless” but I also get that as well with the headaches.

I have spoke to my Dr about this, & I hear the same thing when I walk in the office with some off the wall symptom, My Dr hadn’t heard of a side effect like that, big surprise. lol

I basically have learned to just improvise, & see what works best for me. Our bedroom is blacked out, no light, I sleep with icepacks on the back of my head, I find for me at least that the cooler I stay, the better I feel, laugh at me if you will, I put a pair of pj pants, & a shirt in ziploc baggies to break out when I have a migraine. I use 3 fans in my room to help with air circulation so it stays cool. I use an eye mask whenever I sleep, & after 10yrs, I am still finding little things here and there. Somedays I don’t come out of my little dungeon, & I feel absolutely no guilt what-so-ever. I know that laundry, dishes & vacuuming will still be waiting for me, when I feel a little better.

I am always happy to swap stories & talk with people in the Lupus circle, its nice to have someone that knows about how crazy it is to live with Lupus.

-Nicole :-)

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