Comments on: Lupus and the Brain http://lupusfamily.com/2010/02/lupus_brain/ Support for individuals whose family or friends have lupus Fri, 20 Aug 2010 23:35:04 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: patty http://lupusfamily.com/2010/02/lupus_brain/comment-page-1/#comment-15792 patty Fri, 09 Jul 2010 00:01:50 +0000 http://lupusfamily.com/?p=351#comment-15792 I have hadproblems with my head going num.And my mind just racing that i couldnt go to sleep cause my brain would nt shut off. I get like flar ups where i cant walk good or think good.Is there anyone out there like this please let me know I have hadproblems with my head going num.And my mind just racing that i couldnt go to sleep cause my brain would nt shut off. I get like flar ups where i cant walk good or think good.Is there anyone out there like this please let me know

]]> By: Chantelle http://lupusfamily.com/2010/02/lupus_brain/comment-page-1/#comment-3199 Chantelle Sun, 28 Feb 2010 06:12:18 +0000 http://lupusfamily.com/?p=351#comment-3199 I have had different variations of effects ranging from mild to severe. My mildest symptoms are the same as you noted, each differing from day to day. The most severe was about 10 years ago when I went through a period of about a month with symptoms such as hallucinations, delusions, periodic catatonic states, and severe depression. I was hospitalized during this time and treated with IV steroids for my active Lupus along with trials of psychiatric medicines in an attempt to treat the psychosis. I have never been formally diagnosed as to why these things happened, only guesses have come up such as CNS Lupus or a side effect of long term prednisone use. The important thing is for Lupus patients and family members/caregivers to be aware of all changes in their mental state and be sure to discuss them and any other concerns with a doctor. I have had different variations of effects ranging from mild to severe. My mildest symptoms are the same as you noted, each differing from day to day. The most severe was about 10 years ago when I went through a period of about a month with symptoms such as hallucinations, delusions, periodic catatonic states, and severe depression. I was hospitalized during this time and treated with IV steroids for my active Lupus along with trials of psychiatric medicines in an attempt to treat the psychosis. I have never been formally diagnosed as to why these things happened, only guesses have come up such as CNS Lupus or a side effect of long term prednisone use.
The important thing is for Lupus patients and family members/caregivers to be aware of all changes in their mental state and be sure to discuss them and any other concerns with a doctor.

]]> By: Nicole Scholz http://lupusfamily.com/2010/02/lupus_brain/comment-page-1/#comment-2972 Nicole Scholz Thu, 25 Feb 2010 20:09:17 +0000 http://lupusfamily.com/?p=351#comment-2972 Jeff, I have been going through a longer than usual issue with my cognitive problems. My cognitive problems would surface for a while then fade off for a while. However, the cognitive issues have been constant now going on 6mos now. My concentration is ok one day, the next I have 0% concentration. On an average day, I will ask my son 5-6 times, what time he has to work.I don't remember phone calls, most of the time I can't recall what I did after I woke up. Maybe your wife can tell you about what Im about to explain, Some days I can tell, my thought process is off, its hard to explain, I know not to drive anywhere or do anything that might cause me harm. Now, I can't tell when my cognitive issues are haywire. I don't think it is stress related, but I don't know what it is. Something else, I have had more migraines more frequently than usual. I have had to find a new Dr, which I don't like to do, however my former Dr in the 5yrs I went to her she never ordered MRI's, eeg's, but I was put on Enbrel & Methotrexate. Jeff, feel free to contact me anytime, I may not have all the answers, but I go through hell & back on a regular basis with Lupus. Nicole Jeff,

I have been going through a longer than usual issue with my cognitive problems. My cognitive problems would surface for a while then fade off for a while. However, the cognitive issues have been constant now going on 6mos now. My concentration is ok one day, the next I have 0% concentration. On an average day, I will ask my son 5-6 times, what time he has to work.I don’t remember phone calls, most of the time I can’t recall what I did after I woke up. Maybe your wife can tell you about what Im about to explain, Some days I can tell, my thought process is off, its hard to explain, I know not to drive anywhere or do anything that might cause me harm. Now, I can’t tell when my cognitive issues are haywire. I don’t think it is stress related, but I don’t know what it is. Something else, I have had more migraines more frequently than usual.

I have had to find a new Dr, which I don’t like to do, however my former Dr in the 5yrs I went to her she never ordered MRI’s, eeg’s, but I was put on Enbrel & Methotrexate.

Jeff, feel free to contact me anytime, I may not have all the answers, but I go through hell & back on a regular basis with Lupus.

Nicole

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