Waiting for Benlysta | My Wife Has Lupus

I haven’t really had much to say lately. However, I was curious about how many people are having the same kind of conversations about the new medication, Benlysta.

My wife’s lupus hasn’t been in remission since I’ve known her. I’m not sure that it’s ever been in remission, but we’ve been talking about what that would be like. How would it be? Would she be able to reduce the amount of pain medication she takes? If your lupus is in remission, does that mean that you will no longer be light sensitive?

Wellness is not something we’ve had to deal with in the last ten years. How would that change our daily routine? Would it change the tempo of our lives? Probably not. My wife does whatever she wants to do, regardless of her health. Would it change how we relate to each other? Probably not. I bring her coffee in the morning because I love her, not because she has a hard time getting up.

Maybe it would just be a matter of not having to worry so much all the time. That would be nice.

Of course, there’s no guarantee that Benlysta will be effective, or even approved by the FDA, so this thinking may be all pie in the sky, whatever that means. But it can’t hurt to be hopeful, right?

1,866 thoughts on “Waiting for Benlysta”

Not worrying so much is huge.

I need to know where I can find belysta. Olso I need to know how much is the price.

I have been on trial benlysta for almost 2 years,one infusion once a month,its in the research program,still on prednisone and plaquenil,thank god the rh dr is close to my town they practically begged me. I ue to work full time as a server and a manager ,but i was off for almost 5 months ,now back to 2 days a week only,thank god i have a husband who has a job.I have been doing very well in the program,but lately i have had a sickness of nauseation,tiredness,achey joints especially in my groin area which is the hips and dry eyes and mouth i will always have a rash on my face,I try to keep on going some times i get overwhelmelmed and get confused. Ihavent had any organ damage yet that I know of,but I put my life on the line praying and praying for a better tommorow.

Jen on September 25, 2010 at 10:39 am said:

Not worrying so much is huge.
mariagloriaanderson41@yahoo.com on December 8, 2010 at 9:18 am said:

I need to know where I can find belysta. Olso I need to know how much is the price.
deb on January 22, 2011 at 9:19 am said:

I have been on trial benlysta for almost 2 years,one infusion once a month,its in the research program,still on prednisone and plaquenil,thank god the rh dr is close to my town they practically begged me. I ue to work full time as a server and a manager ,but i was off for almost 5 months ,now back to 2 days a week only,thank god i have a husband who has a job.I have been doing very well in the program,but lately i have had a sickness of nauseation,tiredness,achey joints especially in my groin area which is the hips and dry eyes and mouth i will always have a rash on my face,I try to keep on going some times i get overwhelmelmed and get confused. Ihavent had any organ damage yet that I know of,but I put my life on the line praying and praying for a better tommorow.