I admit the whole BuddyPress experiment was a failure. I checked this evening and there were thousands of spam users and splogs. It will take a little time, but I installed a plugin to delete all of it. I think it’s time to go back to square one.
This is a blog about my life with lupus, specifically my life with my wife, Jennifer, who has lupus. Jenny’s lupus may often limit her, but it doesn’t define her. While lupus may affect our lifestyle, we don’t let it color the canvas of our family portrait. It’s just something we deal with, like taxes or taking out the garbage.
I don’t want to appear that I’m making light of a difficult situation, but rather I would like to explain how we manage to deal with it. We deal with it as a family.
I apologize to those who were trying to use the BuddyPress system in the way I intended and I’m sorry some of the genuine discussions were lost. I’m sorry I let this go for so long, but it’s been a very difficult year for me, and this blog wasn’t a priority. It will take a little time, but I will get things back in order and try to make this a worthwhile resource once again.
On a more positive note, Jenny has started receiving Benlysta, and so far things are going well. We are very hopeful for some positive results from this new medication.
You have a very nice and informative site. I’ll be checking back to see how your wife is doing on her new meds. I have an adult son who has been living with most of the symptoms for the past five years. He is unable to keep a job due to fatigue and has not been accepted for SS disability. He is trying to get on state aid and has temporary medical but really needs long term due to the prescriptions he needs.
Keep up the good work. You are helping others.
It’s nice to read a husband’s perspectives on the lupus experience. I have just started Benlysta also, and will be interested in following you wife’s response to her new treatment. Thanks!