I just joined the new discussion board forums over at the Lupus Foundation of America, which looks like it’s going to be a great resource for folks with lupus.
I posted in the introduction thread, but I really hesitated before doing it. I looked around and all the posts are by people diagnosed with lupus. There is no forum for spouses or friends and family. There is a forum for men, but it’s for men who have lupus.
Am I spinning my wheels here? Or is it just too early to judge?
It is estimated that 1.5 million people in America have lupus. This disease has a profound effect on their lives and on the lives of the people that love them. Lupus is an often misdiagnosed illness that is confusing to many health professionals and misunderstood by the media and the masses. It is essential for the lupus patient to have access to competent medical specialists who are using up-to-date treatment options and medications, and to have a support network of friends and family who are educated and aware of how difficult it is to cope with lupus and symptoms of lupus. Continue reading