Hope Through Song

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My wife has had this project on the back burner for some time now. She would like to start producing music that will inspire those with lupus and educate those who do not know how this chronic illness changes the lives of so many. As it says on the Hope Through Song website, “It is our goal to touch as many people as possible to let them know they are not alone and that there is hope after diagnosis.”

I’ve heard some of the tracks of the songs she’s been working on and I think it’s a great project.

Why all at once?

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Why does everything seem to happen all at once?

Things just continue to pile up. We’ve had car trouble in the thousands of dollars, because of maintenance and accidents. Stuff is falling apart around the house. Jenny had a severe reaction to Arava which was very scary. My work is insane, and when I say insane, I mean crazy, like dressed up like Mayor McCheese shooting up a Burger King crazy. It’s all too much for me, I guess.

Knowing that it is never smart to ignore symptoms, I went to the doctor to see why I’ve been having chest pain. I went expecting to hear, “Oh, you are stressed out. You are fine.” That’s what I expected, but that’s not the answer I got. I got, “Oh, well, you may be having some issues. You need to go to a cardiologist.”

Seriously? Now? I don’t have time right now.

Ignoring Symptoms

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Sometimes when people deal with chronic pain or with an ongoing illness, they will start to ignore symptoms that may be warning signs of serious complications. They may ignore them because they are to busy to be bothered with them, or they may just be so used to those types of problems that they assume that they are just more of the same problem.

It is essential that lupus patients remain aware and proactive when dealing with new symptoms or old symptoms that return with regularity. A trip to the doctor may be inconvenient, but it could save your life. Sometimes when the ostrich sticks its head in the ground, it gets run over by a jeep.

The lesson for the week is don’t get run over by a jeep.

100th post

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I just realized that this was going to be my 100th post on LupusFamily.

It’s getting close to Mother’s Day and I thought I would dedicate the 100th post of this blog to my wife and all the other mothers out there with lupus.

My wife does her best to be a good mom, and though she may not always feel successful, I think she’s wonderful.

This blog celebrates my Jenny and all the Jennys out there in the world that try and balance their life while dealing with chronic illness.

A mother is the truest friend we have, when trials heavy and sudden, fall upon us; when adversity takes the place of prosperity; when friends who rejoice with us in our sunshine desert us; when trouble thickens around us, still will she cling to us, and endeavor by her kind precepts and counsels to dissipate the clouds of darkness, and cause peace to return to our hearts. ~Washington Irving

Happy Mother’s Day Jennifer, a few days early.