I’m feeling a lot better, so I’m going to try and get back on track with this website. My goal is to post every Thursday and then gradually reconfigure the site to include useful news and additional content. I started this site so that I could make some kind of difference, but I think I lost my steam when I realized how many sites there are out there that have really useful information about lupus. I felt that what I could write or report could be found just as easily somewhere else, but I now wonder if that’s true.

This site isn’t just about lupus. It’s about how lupus affects not only the person with lupus, but also all the people that care about them. For as much as I would like it to be different, my wife’s lupus impacts my family more than any other factor in our lives. It is the single most discussed topic. It has an effect on what we do each and every day. I’ve gotten so used to it, that I don’t think about it anymore.

I mean it. I don’t think I think about Jenny’s lupus like I did a few years ago. It’s like living in a house next to a train track. At first, the noise keeps you awake at night and drives you crazy, but after a while, you just sleep right through the noise. (more…)

I was going to try and make this particular poll go a bit longer, but I think we’ve all heard enough about fluorescent lights for now. 18 out of 19 people who responded have some type of adverse reaction to fluorescent. They are obviously not good for people who have lupus. I think we knew that already. About the only thing I have learned from this so far is how to spell fluorescent.

We don’t have any fluorescent light in the house, with the exception of the kitchen, which has these four rows of those banks of bulbs behind plastic translucent sheets. One of the things that I would like to do, once there’s money to do so, is to tear those out and install some incandescent down lighting.

On another note, I wanted to say thanks for those folks who have supported the site by using the amazon links (you don’t have to purchase the stuff shown as long as you start your search through the link) and those of you who check out some of the cycling advertisements. It’s pennies here and there but they do add up. Thanks!