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	<title>My Wife Has Lupus &#187; fibromyalgia</title>
	<atom:link href="http://lupusfamily.com/tag/fibromyalgia/feed/" rel="self" type="application/rss+xml" />
	<link>http://lupusfamily.com</link>
	<description>Support for individuals whose family or friends have lupus</description>
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		<title>Answering Questions</title>
		<link>http://lupusfamily.com/2010/02/answering-questions/</link>
		<comments>http://lupusfamily.com/2010/02/answering-questions/#comments</comments>
		<pubDate>Thu, 18 Feb 2010 10:16:03 +0000</pubDate>
		<dc:creator>Jeff</dc:creator>
				<category><![CDATA[Daily Life]]></category>
		<category><![CDATA[fibromyalgia]]></category>
		<category><![CDATA[marriage]]></category>
		<category><![CDATA[talking about lupus]]></category>

		<guid isPermaLink="false">http://lupusfamily.com/?p=342</guid>
		<description><![CDATA[My wife asks me a lot of questions. She usually asks me first thing in the morning why she is so sore or why she feels so terrible. During the day, she will ask me at least once why she feels so tired or why she has trouble staying awake, and early in the evening [...]]]></description>
			<content:encoded><![CDATA[<p>My wife asks me a lot of questions. She usually asks me first thing in the morning why she is so sore or why she feels so terrible. During the day, she will ask me at least once why she feels so tired or why she has trouble staying awake, and early in the evening she will start asking why her back and her legs hurt so much. When we go to bed, she usually asks a sort of compilation question of sorts, wondering what is wrong with her.</p>
<p>I used to say, &#8220;<em>Well, you&#8217;ve got lupus</em>.&#8221; However, that is not what she wants to hear.</p>
<p>She knows she has lupus. She knows as well as I do how lupus works. She knows she has fibromyalgia. She knows she has rheumatoid arthritis. She knows.</p>
<p>I have a hard time with these questions. I know she knows, so the trick is to figure out at that moment, what does she really want? Sometimes, she really does want to know why something is hurting that doesn&#8217;t usually hurt. The problem is, of course, that I am not very good at figuring this stuff out.</p>
<p>More often than not, I make the mistake of just giving a straight answer. <em>Your back hurts because you moved furniture</em>, or <em>you&#8217;re tired because you didn&#8217;t eat anything today other than an apple and some toast</em>. Even worse, I usually add something like, &#8220;<em>&#8230;even though I told you not to</em>&#8221; or &#8220;<em>in spite of the fact that I reminded you</em>.&#8221; I know&#8230; I&#8217;m working on it.</p>
<p>Sometimes she just wants to know that things will get better, or that the pain is temporary. I can certainly tell her that, even though I don&#8217;t know if it&#8217;s true. I don&#8217;t know that it&#8217;s not true, so I feel like I&#8217;m still being truthful.</p>
<p>The real problem for me is that I want to be able to give her an answer, you know? I want to be able to explain what is really happening, because that is the kind of answer I would want. But my wife is not like me. I am all wires and numbers and she is made up almost entirely of emotions and intuition. My very factual answers do little to make her feel better. Instead of reminding her about how connective tissue disorders work, I sometimes think it would make her feel better if I said, &#8220;<em>Well, it&#8217;s a full moon&#8230; that&#8217;s why</em>.&#8221;</p>
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		<title>New Fibromyalgia Blog</title>
		<link>http://lupusfamily.com/2008/10/new-fibromyalgia-blog/</link>
		<comments>http://lupusfamily.com/2008/10/new-fibromyalgia-blog/#comments</comments>
		<pubDate>Tue, 28 Oct 2008 04:01:34 +0000</pubDate>
		<dc:creator>Jeff</dc:creator>
				<category><![CDATA[Lupus News]]></category>
		<category><![CDATA[blogging]]></category>
		<category><![CDATA[fibromyalgia]]></category>
		<category><![CDATA[Resources]]></category>

		<guid isPermaLink="false">http://lupusfamily.com/?p=88</guid>
		<description><![CDATA[I came across a relatively new blog that gives tips for dealing with fibromyalgia and chronic fatigue. Here&#8217;s a bit from a post about preventing brain or fibro fog: Always Keep your keys and purse on the same hook or in the same place. Make lists, prioritize, and complete them if you can while you [...]]]></description>
			<content:encoded><![CDATA[<p>I came across a relatively new blog that gives tips for dealing with fibromyalgia and chronic fatigue. Here&#8217;s a bit from a post about <a href="http://selfhelpmagazine.com/blogs/fibromyalgia/2008/10/18/part-i-brain-fog-in-fibromyalgia-and-cfs-prevention-tips/">preventing brain or fibro fog</a>:</p>
<blockquote><ol>
<li>Always Keep your keys and purse on the same hook or in the same place.</li>
<li>Make lists, prioritize, and complete them if you can while you are feeling better.</li>
<li>Try to take on and finish important things during your best times without overdoing it by scheduling too much.</li>
</ol>
</blockquote>
<p>The blog, <a href="http://selfhelpmagazine.com/blogs/fibromyalgia/">Fibromyalgia and Chronic Fatigue Tips</a>, is a part of <a href="http://www.selfhelpmagazine.com/index.php">selfhelpmagazine.com</a> and is written by Robin August, PhD.</p>
<p>The poll is doing quite well. I certainly have never gotten that many contributions to a regular post. I&#8217;m going to give it another week and then discuss the results, so if you haven&#8217;t voted yet, you should get on it.</p>
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		<slash:comments>6</slash:comments>
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		<title>Lupus News for January 24, 2008</title>
		<link>http://lupusfamily.com/2008/01/lupus-news-for-january-24-2008/</link>
		<comments>http://lupusfamily.com/2008/01/lupus-news-for-january-24-2008/#comments</comments>
		<pubDate>Fri, 25 Jan 2008 04:35:21 +0000</pubDate>
		<dc:creator>Jeff</dc:creator>
				<category><![CDATA[Lupus News]]></category>
		<category><![CDATA[fibromyalgia]]></category>
		<category><![CDATA[genetics]]></category>

		<guid isPermaLink="false">http://lupusfamily.com/?p=33</guid>
		<description><![CDATA[Reuters reports that genetic research sheds light on causes of lupus. Gene studies home in on lupus cause Can Pfizer legitimize fibromyalgia with its new television ad campaign? Drug Approved. Is Disease Real? from the New York Times.]]></description>
			<content:encoded><![CDATA[<p>Reuters reports that genetic research sheds light on causes of lupus. <a href="http://www.reuters.com/article/healthNews/idUSN2033315020080120?sp=true">Gene studies home in on lupus cause</a></p>
<p>Can Pfizer legitimize fibromyalgia with its new television ad campaign? <a href="http://www.nytimes.com/2008/01/14/health/14pain.html?_r=1&#038;em&#038;ex=1200459600&#038;en=bac45d5aff5a17d7&#038;ei=5087%0A&#038;oref=slogin">Drug Approved. Is Disease Real?</a> from the New York Times.</p>
]]></content:encoded>
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